May is National Cystic Fibrosis Awareness Month.

 

What is Cystic Fibrosis?

 

Cystic Fibrosis is a genetic disorder that affects the lungs, pancreas, and other organs. It is a progressive, genetic disease that causes long-lasting lung infections and limits the ability to breathe over time.

 

More than 30,000 children and adults in the United States have CF (70,000 worldwide) and CF affects people of every racial and ethnic group.

This is near and dear to my heart because my mother had a rare form of Cystic Fibrosis (CF), which she was diagnosed with when she was an adult. Her life became centered around her treatments, which she followed with exquisite compliance. I would like to take time to bring awareness to this incurable disease, not just for those diagnosed with it, but also for all the families that are going through the battle with their loved one. Unfortunately I lost my mom in 2019, but I want to honor her memory and pay tribute to her courageous battle by bringing recognition to National Cystic Fibrosis Awareness Month.

I will tell you that there are new advances in medications and therapies, that can be a “miracle” for many with this disease. The Cystic Fibrosis Foundation (CFF) is the world’s leader in the search for a cure for CF, and supports a broad range of research initiatives and clinical trials, in order to tackle the disease from all angles. No matter where you are in life — whether you’re a person with CF, parent, or caregiver — CF Peer Connect can connect you to a peer who has been through a similar situation.

There are many ways to support and connect with people with CF and their families. You can choose to donate money or get involved with your local chapter,  every little bit helps make a difference.

Please take time to educate yourself about CF by visiting The Cystic Fibrosis Foundation.

 

 

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